Activity

shelby15
shelby15 joined the group
5 months ago
shelby15

shelby15

Nowata, OK
  • Gender Female
  • Age N/A
  • Relationship Married
  • Connection to MS
arservlt
arservlt joined the group
5 months ago
arservlt

arservlt

Durham, NC
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
Joel-Vogel
Joel-Vogel joined the group
5 months ago
Joel-Vogel

Joel-Vogel

Payson, AZ
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
kahlm
kahlm joined the group
5 months ago
kahlm

kahlm

Chicago, IL
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
lisakinzig
lisakinzig replied to discussion RE:Living independent Alone - Transitioning to Community living
5 months ago
So very, very sorry to hear of your struggles. Not knowing where you live or resources you may have available, I guess my best thought to get you at least going in right direction might be calling an MS Navigator listed on MS Society website? Actually, if someone could help you get into an assisted-living facility, you may very well find activities and people with whom you can connect. Best of wishes to you!
lisakinzig
lisakinzig replied to discussion RE:New symptoms??
5 months ago
Well, you sure aren't alone....but I thought I was, until I saw your post:) So strange...it started with not tolerating turtle necks or sweat shirts, then necklaces. Anything around my neck bugs me now, no matter how 'light' it is....it still feels uncomfortable. Lately, I would just as soon not wear any clothes at all--really weird.
lisakinzig
lisakinzig joined the group
5 months ago
lisakinzig

lisakinzig

Miles City, MT
  • Gender Female
  • Age N/A
  • Relationship Married
  • Connection to MS
jasonprestovfd
jasonprestovfd replied to discussion RE:I'm new (here, not to MS!)
5 months ago
cHaos,I think you will find that here you are among friends. We discuss alot of things here, (good, bad, and ugly). We are here for each other. I read your story and I want to tip my hat to you. I'm glad you joined this site.
cHaos
cHaos created discussion Any current or past Copaxone users?
5 months ago
So I am wondering if anyone out there has experienced a lot of site reactions when using Copaxone?  It's been a few years since the last time I used it, but in the time I've had MS (23 years now) I used it for about 15 years.  I'm just curious if my site reactions were totally out of bounds or if other people have encountered the same difficulty?
maria1
maria1 replied to discussion RE:I'm new (here, not to MS!)
5 months ago
Hi cHaos,We chat about plenty of things on the DISCUSSION page and there are comments there about copaxone and the side effects, welcome.
cHaos
cHaos created discussion I'm new (here, not to MS!)
5 months ago
I'm new, to this forum (just not to MS).  It's been years since I've tried to connect with others who live with this, I was newly diagnosed the last time I was involved in groups and...  It didn't work out very well for me so I've been very reluctant.  But I'm much older now, and hopefully wiser.  I don't anticipate anything negative to be found here.  Mostly, it would be nice to talk to people who understand - really understand, because they live with it too.  I was diagnosed 23 years ago so...  I've been around for a minute or three.I'm also hoping to hook up with others who were on Copaxone for longer periods of time, and find out what kind of side effects are common.  I have always thought mine were out of the ordinary, but until I talk to others who have been on this therapy it's a little hard to guess.  In the end I just hope this is a good place for me to meet people.  It's just that simple!
cHaos
cHaos joined the group
5 months ago
cHaos

cHaos

Covington, WA
  • Gender Female
  • Age 50
  • Relationship Single
  • Connection to MS
shellygirl76
shellygirl76 joined the group
5 months ago
shellygirl76

shellygirl76

Minneapolis, MN
  • Gender Female
  • Age 43
  • Relationship Single
  • Connection to MS
sassy2017
sassy2017 joined the group
5 months ago
sassy2017

sassy2017

St. George, UT
  • Gender Female
  • Age 54
  • Relationship Married
  • Connection to MS
greatgaspar
greatgaspar joined the group
5 months ago
greatgaspar

greatgaspar

Battle Ground, WA
  • Gender Male
  • Age 43
  • Relationship Married
  • Connection to MS
snoopylloyd
snoopylloyd joined the group
5 months ago
snoopylloyd

snoopylloyd

El Paso, TX
  • Gender Female
  • Age 48
  • Relationship Single
  • Connection to MS
capitolcarols
capitolcarols replied to discussion RE:New symptoms??
5 months ago
I have had this problem with my clothes.  They feel heavy and really get me upset and I just don't want clothes on me.  
capitolcarols
capitolcarols replied to discussion RE:Stopping Your MS Therapy
5 months ago
Hi Chug,I had to stop MS therapy because of lack of insurance.  I haven't had any bad side effects and I feel much better without that Tysabri crap in me.  I had been on Tysabri for six or seven years and hated it.  I am not sure of starting anything again.  Or starting Ocrevus, I don't  like the idea of having infusions again.  Are you on any MS treatment therapy now?
capitolcarols
capitolcarols replied to discussion RE:Ocrevus question
5 months ago
I had been on Tysbari for six or seven years.  I'm off of treatment now because I hadn't been able to get insurance since I had to wait for my SSA Part B to be accepted so I could apply for Part C insurance.  I know that I do not want to go back on Tysabri since it gave me PM, low for now.  I also do not want to go back to that neurologist.  He also overprescribed medications for me which resulted in two months of non-stop diarrhea.  I want to try pills, but taking Tecfideria would only increase my PML and I don't know what else is available.  Does Ocrevus cause PML too?  How did it make you feel afterwards?  How long did you have to sit there for your infusion?  
capitolcarols
capitolcarols joined the group
5 months ago
capitolcarols

capitolcarols

, VA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS