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maria1
maria1 replied to discussion RE:Beyond Progressive?
6 months ago
My first impression is: when you become dangereous to yourself and others, but that is assuming you still have your mind. Some days I watch myself and become cautious about what I do, but then I forget and move on, and do things that again remind me. I joke to myself that I am fine as long as I can wipe my own butt, but as I see my forgetfulness growing I wonder what is relevant, Losing my mind, undercooking food as well as overcooking food, lately we eat a lot of charcoal, but it lets me know that someday I may forget there is food on the stove. I think? but dont know for sure, that some states have measures for voluntary hospice. If you are really curious you can call a local hospice and chat with a social worker, just as people preplan their own funerals before they become dependent upon others.I decided to save my family a lot of money by donating me to a research hospital, they will keep my body for two years then offer what is left to the family if they want to bury me or they will cremate me, ads say I am saving the kids at least eight grand.We live on a farm and I do a little of the upkeep so it is very easy for me to see the mental deterioration, driving off cliffs, leaving engines on, easy stuff that shows me how dangerous i am getting.Nowadays the world is letting us choose when we want to leave this planet, and choose how much suffering we think is enough, what do you think.
Engineer
Engineer replied to discussion RE:Seated tai chi?
6 months ago
I found a book "seated taiji and qui gong" by Cynthia Quartz which is also helpful.  Thanks Michelle! 
Engineer
Engineer created discussion Beyond Progressive?
6 months ago
How does one know when complications of MS has gone beyond progressive and entered the Hospice eligiblity stage?  I am not there yet, but what should I be alert for?  I am at a chronic and worsening stage now 
egibbs6
egibbs6 created discussion Insight needed! Clean MRI’s but progressive MS symptoms for 9 yrs
6 months ago
Hello,My goal is to get some insight on how others who struggled to find a diagnoses finally did. I'm miserable with all MS symptoms and have a clean MRI's of brain and spine (with a few dots in the frontal lobe, which they aren't worried about), so neurologists don't have answers. I have bad episodes that come and go throughout the day so when I've had a neuro exam (which is just a quick moment in time) I can pass it. My fear is it won't show up and I won't ever be properly diagnosed as mine could be not inflammatory in nature and more dengenrative over time which may suggests PPMS, hence no or disappearing lesions at the time of MRI. My story: I have been having weird neurological symptoms for 9 years - come and go, worse at certain times but always around and have been manageable for the most part until recently. So the past 5 months I have started to get worse and worse. It all started with dizziness, tingling and leg weakness 9 years ago. Now it has grown to arm weakness, random tingling throughout my body, muscle twitches everywhere, horrible episodes of brain fog, speech issues, nerve pain, etc., etc. What's worse is my family thinks it's CFS and anxiety. I have been tested for every disease that mimics MS, all negative. I feel so isolated with these symptoms, I KNOW something is very wrong. If anyone else out there could offer insight on how I can advocate and help doctors lead me to a diagnoses that would be helpful! I want to make sure more time doesn't pass before I can get on the proper drug.  Thank you!
egibbs6
egibbs6 joined the group
6 months ago
egibbs6

egibbs6

, VA
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
dkw
dkw joined the group
7 months ago
dkw

dkw

, FL
  • Gender Female
  • Age N/A
  • Relationship N/A
  • Connection to MS
dewportusa
dewportusa joined the group
7 months ago
dewportusa

dewportusa

Shiloh, OH
  • Gender Male
  • Age 56
  • Relationship Married
  • Connection to MS
maria1
maria1 replied to discussion RE:Holiday Prep
7 months ago
Hi Nycki, Please remember to be careful.. you are not superwoman anymore. The holidays wont be any fun if all is done and you wind up ill. Watch yourself carefully, and dont worry about having everything perfect, make sure you are well enough to enjoy it all.
maria1
maria1 joined the group
7 months ago
maria1

maria1

Best Place, MO
  • Gender Female
  • Age N/A
  • Relationship Divorced
  • Connection to MS I have MS
alicehoo10
alicehoo10 replied to discussion RE:Blood Clots?!
7 months ago
Thanks, he is doing well. He can still walk around but only with a walker otherwise he loses his balance and falls. He'd be confined to a wheelchair if not for the pump  so we are thankful for it.  With the pump it's much easier to adjust meds as needed too. he had a heck of a time when they did the surgery to install it. For two months He swore his brain was communicating with the pump  so I don't think he was prepared as as well as we thought he was    It was a rough couple of  months. We think we figured out he had a reaction to the medicine that they used to put him under for the surgery.  Always something. 
newmommie2003
newmommie2003 created discussion Holiday Prep
7 months ago
Hi everyone,I hope everyone is doing well. With the holidays fast approaching, I know I feel stress and anxiety as I prepare for them. We have every holiday and birthday at our home because I can not get in to anyone elses house. So we have to do the extra special house cleaning, all the pre-holiday baking, the holiday cooking, the decorating, etc. It can, at times, seem very overwhelming. I try to pace myself and take breaks in between each task.It isn't always easy to do, but I remind myself that if I push to hard to fast, I will pay for it the next day and not be able to do anything.I was wondering how you all handle the stress of the holidays. Does anyone have any tips? I would like to maybe even try one or two suggestions.I would also like to welcome all of the new members. I hope that you all find this group a good source of information and support. I would love to hear from all members of the group, whether there are posts or private messages. I want to know what you would like to know, what questions you may have.I look forward to hearing from you,Nycki
mark501111
mark501111 joined the group
8 months ago
mark501111

mark501111

Montrose, CO
  • Gender Male
  • Age 28
  • Relationship Divorced
  • Connection to MS
jbrad721
jbrad721 joined the group
8 months ago
jbrad721

jbrad721

Port Orange, FL
  • Gender Male
  • Age N/A
  • Relationship Married
  • Connection to MS Spouse has MS
mightymucketeer85
mightymucketeer85 joined the group
8 months ago
mightymucketeer85

mightymucketeer85

Piscataway, NJ
  • Gender Female
  • Age 34
  • Relationship Single
  • Connection to MS
KimColo
KimColo joined the group
8 months ago
KimColo

KimColo

Southwest Denver, CO
  • Gender N/A
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  • Connection to MS
rbaz
rbaz joined the group
8 months ago
rbaz

rbaz

, PA
  • Gender N/A
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  • Connection to MS
gavenbessler
gavenbessler joined the group
8 months ago
gavenbessler

gavenbessler

Jacksonville, AR
  • Gender N/A
  • Age N/A
  • Relationship N/A
  • Connection to MS
golgotha
golgotha replied to discussion RE:Why Are People Clamoring for Healthcare Reform?
9 months ago
To answer your headline question, it's simple: The private, for-profit US health care system is simply broken.Our health care system is not working. We have by far the most expensive health care in the world -- by far -- and we have a life expectancy that is going down with tens of millions of people without health care.When I live in Europe, many people I met simply did not understand the concept of how someone could go bankrupt for being sick. Yet we in the US are indoctrinated and brainwashed to think that is normal.Once upon a time we had private, for-profit fire departments. But then we realized that was stupid, discriminatory and harming the public. So we socialized the system and created public fire departments that are cheaper, more efficient and serve everyone.We need to do the same thing for health care.
j-street619
j-street619 joined the group
9 months ago
j-street619

j-street619

Spring Valley, CA
  • Gender Male
  • Age 41
  • Relationship Married
  • Connection to MS
mohler-john
mohler-john created discussion Why Are People Clamoring for Healthcare Reform?
9 months ago
In some notes, I saw that in 2011 we were paying $260 a month for my Medigap policy. Now, eight years later, we are paying $400 every month. That is a 65 percent increase. No way our income went up anywhere near that much. That's one of our insurance bills. Just saying. My insurer will keep cranking up the increases because at this point no one else will take me. At the rodeo the rider has to hold on for eight long seconds. We've got to hold on for 11 more years until I'm eligible to enter the federally protected open marketplace.So, uh, not looking for free stuff. Rather, not wanting my wife to wind up destitute because of my trick nervous system. Got it?