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terrijonowling
Confused *

I have had ms for 14 yrs. lately i have been feeling like my hair hurts and i want to shave my head or cut off my long hair. I also feel like throwing out my clothes that feel uncomfortable to…

1 Replies

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maria1
Some choices we live not once but a thousand times over as we live our lives.. Richard Bach *

anywhere..........  this quote you posted a few days ago is very real for me though I never thought about it in those words. I have gone back about five times and am trusting my memory because…

0 Replies

267 Views

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mom_of_mser
Ocrevus symptoms*

Hello, I've never done this sort of thing before, I don't know how it works. (Posting that is) my daughter has had ms since she was 20 she is 33 now. She is about to take her 3erd infusion and…

3 Replies

344 Views

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Kris-MSConnection
A Resource for the Young and Not-So-Young

We, at the Society, want to be a place for people, young and not-so-young, to connect with one another because we know that is how many solutions to life’s challenges can be found. We also…

7 Replies

215 Views

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corrine_renee
Any other teenager out there have a parent with MS? *

My mom has had MS her whole life and I could never relate to someone on having a parent with a disability. Her MS has gotten worse to where she's fully wheelchair bound and this happened…

12 Replies

389 Views

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sopuli
MRI + symptoms*

Two weeks ago I woke up at night to use the bedroom and when I got out of bed I fell because my left gave out. It took maybe 15-20 seconds before I could get up, and went to the bathroom with…

4 Replies

366 Views

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ninipaw
Hei, I'm Cecilia *

Hei, I'm Cecilia. I'm diagnosed with secondary progressive MS, I recently got blind on right eye it happened so fast, it's been very difficult that everything has happened so quickly. I used…

4 Replies

378 Views

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PrincessD
Me again ! *

So , i want to bring light to MS through social media and i need some tips on where to even begin. ALSO i want to keep in touch with everyone more so if anyone wants my number or social media…

2 Replies

446 Views

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heyjose
Symptom questions *

I had an interesting interaction with my neuro the other day, which has led to other questions.  I will ask him when I go back in a week.  I wanted to pass it by you smart people to see if I…

6 Replies

493 Views

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echobird
Hate this MS but I finally got right meds.*

Ok well had to start taking ampyra finally. Before I started I couldn't walk with a walker but from my hospital bed to my bathroom or get in and out of the shower without help or get dressed…

7 Replies

391 Views

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Metalmantha
Symptom severity variations. Relapse what? *

Diagnosed RRMS around 6yrs ago. Presented with Lhermitte's sign (I get an electric shock when I put my head down), and pain in my leg which lead to drop foot (which I received steroids for and…

8 Replies

394 Views

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PrincessD
Hey it’s me again lol*

Well i Am finally home now ! i have completed my Plasmapheresis treatments & i do feel like they helped a lot with my lesions. The only thing that has been getting me down is my left arm. It's…

3 Replies

394 Views

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momneedsanap
Neuro soon*

Hi all. I recently went to my PCP who ran a battery of blood tests that came up negative. This included Lyme, thyroid, deficiency for b12, mag  and d,  plus a bunch of tests for RA, lupus and…

2 Replies

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Dennis-T
“Those who cannot change their minds cannot change anything.”-George Bernard Shaw*

“Those who cannot change their minds cannot change anything.”-George Bernard Shaw I've been consuming a lot of self improvement advice (and hopefully changing for the better). I also have MS…

3 Replies

341 Views

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pritcharddesign
Partner’s severe cognitive dysfunction*

hi I have been with my partner for 11 years. He was diagnosed with MS before we met. He has always been highly functional, with walking distance being his main problem. However, he’s also…

12 Replies

345 Views

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PrincessD
update on how things are going .*

I appreciate all the kind words i've been receiving ❤️ ! This is still just so unreal to me , it's crazy. Well Today october 28th will be my last day in the hospital hopefully for a long time.…

3 Replies

375 Views

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Badwhiskey7
Hands in the air with defeat, overwhelmed and waiting the inevitable. *

Im going to do everything in my power to keep this short. I’d like to think I’m a strong spouse and parent and on the outside I am, inside I’ve already accepted my demise and sadly await if…

2 Replies

367 Views

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Summer1
MRI *

Hello everyone, I recently had an MRI of the spine and for the first time my legs were twitching a lot and my body heating up while I was in the MRI machine. Has this ever happened to anyone…

6 Replies

221 Views

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PrincessD
Newly Diagnosed *

I need some help explaining my symptoms to my doctors correctly , my left arm lost sense of awareness if that makes since ? Like when i'm laying down i can't tell where my arm is placed. or if…

6 Replies

434 Views

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PrincessD
I am newly diagnosed and scared. *

i'm a rare human being. I'm only 16 and i've been officially diagnosed with MS. i don't know how to put my words together right now. I'm looking for a little support group. i've  been in the…

6 Replies

322 Views

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