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Weight a Minute!

Blog Summary

As I was closing up the studio after teaching a yoga class yesterday, the man whose accounting office is across the hall and with whom I am friendly popped in to chat a minute. He commented that it looked as though I had lost some weight. I hadn’t been making any special effort to slim down. I explained that I always seem to drop a few pounds in the summertime because I’m so active when the weather is warm. I swim and bike and walk the dog a lot, soaking up the sunshine (wearing sunscreen, of course!). I also substitute for other yoga teachers while they’re on vacation, so I even do more yoga than usual...

Letting the Light In – A Note on Travel

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"Your assumptions are your windows on the world. Scrub them off every once in a while, or the light won't come in." – Alan Alda I love this quote. So simple, yet powerful. And, for me, it touches poignantly on a rather irksome tendency of the human mind: to take most anything for granted. To suppose that our circumstances and the world at large simply are a certain way, thereby dirtying our windows and blocking the light of possibility, so to speak...

Eating and Your Emotions

Blog Summary

Even the most subtle changes in mood can impact other aspects of daily living. Decreased motivation and energy, as well as changes in sleeping patterns and eating habits are common consequences. But each of these changes can, in turn, affect your nutritional well-being. Some people turn to food for solace when they are depressed. Certain foods create a sense of comfort. If it sometimes seems like food is the only thing that will make you feel better, pay special attention to the choices you make. The “comfort foods” you turn to may be high in fat and can add unnecessary calories to your diet...  

Diet & Nutrition with Dr. Ellen Mowry & Denise Nowack, RD

Blog Summary

This month, we’re launching an exciting new and interactive feature on the MSconnection.org community. We know many of you are interested in how to live your best lives right now. That’s why we’re bringing together people with MS, those who care about them and experts on a variety of important topics to talk about issues that matter most to you. Each month, you will have an opportunity to submit your thoughts, tips and questions related to that month’s theme. We’re kicking things off with a conversation about diet and nutrition. Maintaining good health is very important for people with MS. A well-balanced and planned diet can help achieve this goal, but with so many to choose from, and differing opinions on which are most effective, it can be a challenge to know where to start, let alone how to stick with one long enough to know if it’s helping...

Surrendering Control?

Blog Summary

As I have repeatedly noted, yoga has helped me enormously in managing my multiple sclerosis and staying in tune with my body’s abilities. But sometimes it helps me recognize and come to terms with my body’s occasional LACK of ability...

What CAM Can – and Can’t – Do

Blog Summary

A few years after I was diagnosed with multiple sclerosis I went to a doctor’s appointment for reasons unrelated to my MS. The nurse who took my medical history confided in me, behind closed doors, that she, too, had MS – and that she was treating it not with one of the handful of FDA-approved disease-modifying therapies (DMTs) that were then available but with bee-sting therapy. Why the whispers? She didn’t want her colleagues – and especially not the doctors she worked with -- to know she had chosen this complementary/alternative medicine (CAM) method over one that was more widely accepted in the medical community...

Choose Wisely

Blog Summary

When it comes to doctors, I always follow instructions. When I’m sick, I take the medicine they give me. If I have a pain, I rely on them to tell me how to get rid of it. When I was pregnant, I didn’t even bother with those pre-natal classes. My entire plan was just to do whatever the doctors told me to do. When it comes to MS, my usual modus operandi is letting me down. I’ve been very surprised about how much has been left up to me. Particularly since the “me” in question is a fairly uninformed rookie when it comes to serious medical issues. What drugs do I want to take? Do I want to modify my diet? Is physical therapy the right choice for me? Do I want to take vitamins or supplements?

Alcohol & MS Risk

Blog Summary

Recent research has found an inverse association between alcohol consumption and multiple sclerosis risk. In this particular study, heavier drinkers were less likely to have MS than nondrinkers.   The research, conducted at the Karolinska Institute in Sweden and published in the journal JAMA Neurology, looked at existing data from two population studies in Sweden. Other research into the relationship between alcohol intake and the risk of developing MS have yielded inconsistent results, leaving physicians without grounds to advise for or against drinking in terms of its impact on MS risk.

Why are parties hard for some people with MS?

Blog Summary

Parties, holiday or otherwise, take many different forms, such as: children’s parties (think 20 six-year-olds, wild with excitement about opening presents and fueled by sugar, sugar, sugar)an office party on a Friday evening (think 30 adults, happy to be done with the workweek, getting a little loud and maybe tipsy as they discuss interoffice gossip)a family celebration (think about all of the emotional baggage that comes with this particular mix of people, not to mention your role in preparing the meal and other tasks) Any of these scenarios can be draining for anyone. However, people with MS have specific symptoms related to the disease that can make parties like this particularly demanding — emotionally, mentally and physically.

Multiple Sclerosis, The Vikings And Nordic Skiing

Blog Summary

Frequently, the reaction that I get when people discover that I have MS is something like “But you’re so active!” or “I never would have guessed - you lead such a healthy life!” Without hearing my story, they don’t realize that one of the reasons I am religious about being so active is actually BECAUSE I have MS.    Many times, when it’s 60 degrees and sunny and I’m out for a light jog I forget that I have MS – my body feels totally normal. However, things are a bit different when it’s 90 degrees and humid and the sun is pounding. I generally get extremely dizzy and off-balance and run like I’m drunk, and I focus all my mental energy on squinting and attempting to control my eyes so that I’m able to see the upcoming dips and rocks on the trails. I have immediate needs to go to the bathroom. When I’m ski racing and my body temperature rises with the added effort and stress, I find myself falling continuously and get a far off look in my eyes as they get more and more blurry.  

More on Exercise and Rehabilitation

Blog Summary

It’s getting clearer that exercise and rehabilitation can help many levels of function and quality of life for people living with MS. This year, ECTRIMS is being held in conjunction with the 18th Annual Conference of Rehabilitation in MS, and I’ve been impressed by the extent to which researchers are applying creative strategies to study and maximize the potential benefits of rehab and exercise to address MS.   Some of these strategies were described by Dr. Dalgas (Aarhus, Denmark), who reminded the audience that for many years people with MS were advised against exercising because it seemed to make fatigue and other symptoms worse. Thanks to research, we now know that this worsening is usually temporary and outweighed by the benefits.